Organising Committee
Dr Ratna Devi
Director
PAIR Academy
Orajitt Bumrungskulswat
Assistant Secretary General
Heart to Heart Foundation (Thailand)
Karen Alparce-Villanueva
President
Philippine Alliance of Patient Organizations (PAPO)
Einstein Rojas
Board Member
Philippine Alliance of Patient Organizations (PAPO)
Bikash Prasad
IT Lead and Admin
PAIR Academy
Mugdha Barik
Program Officer
PAIR Academy
Chitransh Saxena
Project Cordinator
DakshamA Health
Jugesh
Finance and HR Manager
PAIR Academy
About the Event
International Patient Summit is a first of its kind patient and caregivers meeting that is planned and delivered by patients and caregivers. Hosted by Patient Academy for Innovation and Research – PAIR, it aims to bring people from around the Asia Pacific and Middle East region to deliberate and discuss topics that are important for them over two days of panel discussions, workshops and breakout sessions. The Summit theme is Equitable healthcare: co-planning, co-designing and co-delivery’ with inclusion of patient voice and lived experience. Accelerating progress towards universal health coverage and delivering on political commitments made in 2019 has never been more urgent. Concrete action is needed to strengthen equitable health systems – including public health functions that are critical for pandemic prevention, preparedness and response, vaccine equity, access to diagnostics and health financing.
A key principle of patient-centred healthcare is patient engagement in the co-creation of safe, qualitative and equitable healthcare.Patients have a right and responsibility to participate, to their level of ability and preference, as a partner in making healthcare decisions that affect their lives. These principles are central to the WHO approach to Health Equity which is to respond to unmet public health needs by creating new ways of thinking and working with a focus on the needs of vulnerable populations to achieve universal health coverage within the context of the Sustainable Development Goals. There are synergies between PAIR’s work on innovative patient-centred healthcare and global efforts to achieve universal health coverage. The Summit will explore how patient-centred approach can address the factors that will lead to universal health coverage and consider the patients’ perspective.
The Summit will include capacity-focussed sessions on how patients’ organizations can advocate on issues of innovation and equity to healthcare. The multi-stakeholder programme will explore a patient-centred innovation to healthcare approach as it relates to three themes: Co-planning, Co-designing & Co-delivery in the context of Asia Pacific and Middle Eastern region.
Plenary and workshop sessions will focus on topics that explore questions such as: What are the barriers to access to disruptive technologies in different world regions? What are the principles that promote gender parity and greater representation from women? What are the indicators of patient-centred innovation in healthcare financing?
The event is jointly hosted by DakshamA Health and Education – India, Philippines Alliance of Patient Organisations- PAPO- Philippines and Heart to Heart Foundation – Thailand.
IPS 1 Report
Workshop Report
Health Literacy Panel Report
Mental Health Panel Report
Agenda
Information Pack
Reimbursement Form
Our Speakers
Universal Health Coverage as a driver of equity, inclusive growth and regional prosperity from the lens of healthcare financing
Dr. Sanjiv Kumar
MODERATOR
Chairperson and Managing Trustee, Three Domain Health Leadership Foundation, Chair, Indian Alliance of Patient Groups
Rehan A. Khan
Opening address
Managing Director, India MSD
Smitha Sadasivan
Speaker - India
Civil Society Representative for the Global South on the UHC2030 Steering Committee
Orajitt Bumrungskulswat
Speaker - Thailand
Committee member, Assistant Secretary General, Heart to Heart Foundation, Thailand
Dhanya Wijesuriya
Speaker - Sri Lanka
Vice President, Hon. Secretary, Board of Trustees –Diabetes Association of Sri Lanka, Director Administration -NCD Alliance Lanka
Karen Villanueva
Speaker - Philippines
President, Philippine Alliance of Patient Organizations,Board Member, Philippine Tuberculosis Society Inc.
Health literacy in the digital world: Patient empowerment with the right tools and knowledge
Einstein Rojas
Chair & Moderator
Board member, Philippine Alliance of Patient Organizations, Certified Innovation Professional – GIMI,Innovation Venture Architect and Foresight Consultant, Web 3 Marketing Consultant
Dr Usha Rani
Addressing misinformation
Associate Professor and Coordinator, Manipal Health Literacy Unit, India Country office Head, Asian Health Literacy Association, Prasanna School of Public Health,Manipal Academy of Higher Education (MAHE), Manipal,India
Pru Etcheverry
Is digital a unifier or devisor
Director, Advocacy Answers, Chair of the Auckland Regional Biobank, Chair of Grandparents Raising Grandchildren, Trustee with SkyCity Community Trust and Chair of Patients Representatives Roundtable, Asia Pacific ISPOR.
Prof Peter Chang
Health literacy from the HCP perspective
President, Asian Health Literacy Association, Vice President, International Health Literacy Association,Adjunct Professor, Tufts University School of Medicine,former Ombudsman, Taiwan.
Dr. Arshiya Zaheer
Tools for Health literacy Industry perspective
Patient Engagement Lead, JCAP, MSD
Ms. Araceli Lanorio
Patient friendly communication
Secretary, Philippines Alliance of Patient Organizations,Patient leader, Neurofibromatosis Friends, Philippines
Access to advanced therapies, Genomics and Gene therapy: Is Asia Pacific ready for advanced treatments?
Dr Madhulika Kabra
Chair & Moderator
Additional Professor, Genetics subdivision, Department of Pediatrics, HOD, Medical Genetics, All India Institute ofMedical Sciences, New Delhi
Dr Claus Runge
Keynote speaker
Global Head, Market Access, Public Affairs & Sustainability,Bayer
Dr. Saumya Jamuar
Promoting patient and patient groups led research
Director, SingHealth Duke-NUS Institute of Precision Medicine; Inaugural Head, SingHealth Duke-NUS Genomic Medicine center; Co-founder Global Gene Corp
Dr Ritu Jain
Access to innovative medicines and gene therapies
President of DEBRA International and DEBRA Singapore
Jeyaseelan Jeyaraj
Data, registries, and technologyHave we really moved forward?
Senior Director, Asia Pacific, Life Sciences Global Industry Unit Oracle Corporation
Communicable diseases: is the story over; TB, HIV and Hep C- lessons learnt for future pandemics
Dr Amitav Banerjee
Chair & Moderator
Professor of Community Medicine, Dr. D Y Patil University of Medical Sciences and Research
Dr Kuldeep Singh Sachdeva
TB
Regional Director - The Union, Southeast Asia at International Union Against Tuberculosis and Lung Disease
Manoj Pardeshi
HIV
General Secretary, National Coalition of People Living with HIV in India (NCPI+)
Danjuma K. Adda
Hepatitis
President, The World Hepatitis Alliance, Executive Director,Founder CFID, CCT Taraba
Women’s health: Endometriosis, PCOS and NCDs. The double disadvantage of gender and being left behind. How can we prioritize women’s health?
Dr Ratna Devi
Chair & Moderator
Director, Patient Academy for Innovation and Research
Sutapa Biswas
HPV and Cx Cancer
Co-founder, Executive Director, Cancer Foundation India
Chand Kaur
PCOS and Metabolic syndrome
Founder & Chief Executive of PCOS Relief, UK
Ranjit Pritam Kaur
NCDs and Gender
Board Member, Reach to Recovery International, Breast Cancer Support, Malaysia
Surita Mogan
Endometriosis and Lifelong diseases
President, Endometriosis Society of Malaysia (My Endosis)
Women’s health: Endometriosis, PCOS and NCDs. The double disadvantage of gender and being left behind. How can we prioritize women’s health?
Dr Ratna Devi
Chair & Moderator
Director, Patient Academy for Innovation and Research
Dr Parminder Gautam
The need for a regional Alliance of patient groups and way forward
National Professional Officer, Patient Safety and Quality,WHO India
Dr Gaurav Sharma
Ensuring right product at point of care using QR code
Head Regulatory Affairs and Safety, Reckitt Benckiser(INDIA) Ltd
Manvir Victor
Patient reported safety incidents –building the metrics and creating the system
Chairman, Patient for Patients Safety Malaysia, Board member of Malaysian National Patient Safety Council,WHO
Arshia Bhandari
Empowering patients to identify and report patient harm.
Pharmacovigilance expert, Patient safety advocate, Founder PhVFIt
Life course vaccination
Chitra Gupta
Chair & Moderator
Lead Patient Advocacy, Pfizer Inc.
Dr. Raj Shankar Ghosh
Vaccines as a life saving measure.
Senior Advisor, Environment Health, Public Health Foundation of India, Senior Advisor, Immunization, PATH
Neelima Dwivedi
Adult vaccination and challenges for uptake
Executive Director, Market Access, MSD
Dr. Supharerk Thawillarp, MD
Vaccines for all- improving access
Division of epidemiology, Department of Public Health,Ministry of Public Health, Thailand
Ms. Nelia Medina
Patient-led Vaccination Campaign
Trustee and Board Member, Philippines Alliance of Patient Organizations
Case studies: In-depth case studies on patients led best practices
Dr. Mahen Wijesuriya
Moderator
Founder / Honorary Secretary – Diabetes Association of Sri Lanka, Founder/ Honorary Secretary – NCD Alliance Lanka
Ms. Marimel Lamsin
The Philippine Alliance of Patients Organization Patient Advocacy
Trustee, Philippine Alliance of Patient Organizations
Nidhi Swarup
Building a National Alliance
Chair, Alliance of Patients' Organizations Singapore (APOS)
Prasanna Shirol
Organization of Rare Diseases
Co-Founder Organization of Rare Diseases India (ORDI)
Mrs. Chuensuk Rerkngarm
Patient Educators of the comorbidity diseases- Diabetes, Heart, Kidney
Committee member, Heart to Heart Foundation
Mental health- The need for integration into all programs
Dr. Nand Kumar
Moderator
Prof. In charge ICMR CARE in Neuromodulation for Mental Health, Department of Psychiatry, AIIMS, New Delhi
Dr Vinay Kumar
Access to Mental Health in Asia Pacific
President, India Psychiatric Society
Lopa Ghosh
Country Coordinator, Global Health Advocacy Incubator, India
Dr Harshita Umesh
Mental Health for young peoplechallenges and opportunities.
Youth Ambassador, Mental Health Advocate, Internal Lead,YOUNGO HWG (Health Working Group), United Nations Framework Convention on Climate Change (UNFCCC)
Smriti Rana
Mental Health and end-of-life care
Head - Strategic Programs and Partnerships, Pallium India,India Advocacy Focal Point for the International Association of Hospice and Palliative Care, Board Member, International Drug Policy Consortium.
Workshop on Patient Safety (patient and family engagement)
Dr. Parminder Gautam
Moderator
National Professional Officer, Patient Safety and Quality, WHO India
Dr. Mahesh Devnani
Medication safety
Additional Professor and Joint Medical Superintendent, Dept. of Hospital Administration, Office of Medical Superintendent, Post Graduate Institute of Medical Education and Research
Dr J N Srivastava
Community involvement in patient safety
Advisor, Quality Improvement, NHSRC, GOI
